“Our goal is to create an ecosystem where anyone in the scientific community around the globe will have the ability to gather funding, interact, discuss research ideas, collaborate and in the end, publish their work through a more efficient, intuitive and transparent platform.”
“Experts say the database of carefully curated medical guidelines is one of a kind, used constantly by medical professionals, and on July 16 will ‘go dark’ due to budget cuts.
The Trump Administration is planning to eliminate a vast trove of medical guidelines that for nearly 20 years has been a critical resource for doctors, researchers and others in the medical community. Maintained by the Agency for Healthcare Research and Quality [AHRQ], part of the Department of Health and Human Services, the database is known as the National Guideline Clearinghouse [NGC], and it’s scheduled to “go dark,” in the words of an official there, on July 16. Medical guidelines like those compiled by AHRQ aren’t something laypeople spend much time thinking about, but experts like Valerie King, a professor in the Department of Family Medicine and Director of Research at the Center for Evidence-based Policy at Oregon Health & Science University, said the NGC is perhaps the most important repository of evidence-based research available. “Guideline.gov was our go-to source, and there is nothing else like it in the world,” King said, referring to the URL at which the database is hosted, which the agency says receives about 200,000 visitors per month. “It is a singular resource,” King added. Medical guidelines are best thought of as cheatsheets for the medical field, compiling the latest research in an easy-to use format. When doctors want to know when they should start insulin treatments, or how best to manage an HIV patient in unstable housing — even something as mundane as when to start an older patient on a vitamin D supplement — they look for the relevant guidelines. The documents are published by a myriad of professional and other organizations, and NGC has long been considered among the most comprehensive and reliable repositories in the world. AHRQ said it’s looking for a partner that can carry on the work of NGC, but that effort hasn’t panned out yet. “AHRQ agrees that guidelines play an important role in clinical decision making, but hard decisions had to be made about how to use the resources at our disposal,” said AHRQ spokesperson Alison Hunt in an email. The operating budget for the NGC last year was $1.2 million, Hunt said, and reductions in funding forced the agency’s hand.”
“In order to better coordinate a repository ecology that includes multitudinous individual systems, and synthesize staff knowledge and expertise that spans decades, the Repository Principles subgroup of CUL’s Repository Executive Group (RepoExec) has created this open handbook of repository principles and strategies.
The handbook provides support for both new and existing repository managers, comprising both recommended practices and specifically identified action steps that will allow them to track their progress and identify gaps. Each section of the handbook covers a different strategic area of repository management, standing largely on its own and linking to other sections when appropriate. Although there is no primary section order, we recommend starting with Repository Scope and Service Planning.
The handbook specifically addresses principles and practices pertaining to digital repositories, where a digital repository can be defined as: a system, the purpose of which is to store, present, and preserve a collection of data for which the library provides services. That is, the term refers specifically to the application as opposed to the content (collections, objects and metadata) within.
Additionally, the handbook is designed to engender a larger conversation about repository management practices, both at Cornell and beyond. As such, it is a living document that RepoExec will continue to edit and update in response to changes in the repository landscape and feedback from readers. While the handbook points to Cornell-specific service centers for providing in-house services and consulting, it is our hope that the document may be useful to a readership beyond the Cornell University Library….”
The purpose of this post is to highlight some good practices when journals cease, some situations to avoid, and room for improvement in current practice. In brief, my advice is that when you cease to publish a journal, it is a good practice to continue to list the journal on your website, continue to provide access to content (archived on your website or another such as CLOCKSS, a LOCKKS network, or other archiving services such as national libraries that may be available to you), and link the reader interested in the journal to where the content can be found.
This is an area where even the best practices to date leave some room for improvement. CLOCKSS archiving is a great example of state-of-the-art but CLOCKSS’ statements and practice indicate some common misunderstandings about copyright and Creative Commons licenses. In brief, author copyright and CC licenses and journal-level CC licensing are not compatible. Third parties such as CLOCKSS should not add CC licenses as these are waivers of copyright. CC licenses may be useful tools for archives, however archiving requires archives; the licenses on their own are not sufficient for this purpose.
“The British Library, working with a group of cultural and memory organisations, is piloting a shared repository service for research content built on an open source platform. The repository aims to increase the visibility and impact of research outputs, making the knowledge generated by cultural institutions easier to explore and use for new research.
The Library has appointed open access publisher Ubiquity Press to build the pilot repository. It will initially be populated with research outputs produced by the project’s partners, the British Museum, Tate, National Museums Scotland and MOLA (Museum of London Archaeology), as well as the British Library’s own open research content….
The repository will be built using Samvera Hyku, a new, rapidly developing open source repository software in which multitenancy is a key feature. Hyku – developed initially in response to a call by the Institute of Museum and Library Services for a National Digital Platform – has a global developer community behind it who have made huge progress in a relatively short time….
“This project is concerned with the Caribbean literary past and the region’s tangible and intangible literary heritage. It is particularly interested in neglected writers and writings at risk of being lost, and in thinking about what influences such precarity. At present, there is no established platform to access the location and scope of authors’ papers, including many scattered and undocumented sources. The literary histories that researchers and students can access are often incomplete and privilege male writers, as well as those who migrated and published with presses in the global north. This project wants to enable fuller literary histories to be told and their sources to be known, preserved and made accessible…..”
“Everytime a scholar retrieves a research paper from Sci-Hub, or from elsewhere, they can elect to archive the paper on ArSciHub. A paper archived on ArSciHub is stored permanently on Arweave’s decentralised blockweave, and added to the ArSciHub index for future access by the archiver and the general public.”
“When Ben Kacyra watched on TV as the Taliban destroyed 1,500 year-old Buddhist statues in Bamiyan, Afghanistan in 2001, he felt compelled to do something. Mr. Kacyra, who happens to be one of the creators of the world’s first three-dimensional laser scanning system, realized that his technology could be used to record monuments at risk of damage due to natural disasters, war, or tourism, so that they could be preserved for future generations.
He founded CyArk, a non-profit that has created the world’s largest and most detailed 3D digital archive of endangered wonders of the world—a lasting record of monuments at risk of disappearing. Now, Google Arts & Culture has partnered with CyArk to open up access to their virtual wonders and share their stories with everyone. …”
“Pathfinders begins the necessary process of documenting early digital literature, specifically pre-web hypertext fiction and poetry, from 1986-1995. These literary works were produced with programming languages like BASIC or authoring systems like Storyspace and HyperCard and require a degree of interactivity between the reader and the work. They were also among the first computer-based works of literature to be sold commercially in the U.S. and, because of their availability through commercial distribution, were influential in shaping literary theory and criticism that, today, are used to discuss born digital writing. They are also literary works in danger of becoming inaccessible to the public because they were produced on and for computer platforms that today are obsolete….”