Open Science: The Next Frontier for Neurology

“What are One Mind’s open science principles?

To support Open Science for brain disease and injury, One Mind urges the international research community to adopt the following principles:

Provide informed consents for collection of medical data obtained from patients, which should permit use of their de-identified (anonymous) data for research related to a broad range of conditions — consistent with protecting patient privacy.

Use widely accepted common data elements and conform to the highest possible standards when clinical data is collected. This enables it to be used by the widest possible array of users, whether academic, medical, clinical or commercial.

Make data available to the research community as soon as possible after study completion, with the goal of opening data access within six months whenever possible.

Make data accessible to external researchers during the course of a study (subject to relevant data use agreements).

Give data generators proper attribution & credit from those who use their data.

Do not delay the publication of findings, as it may affect patient care.

Intellectual property should not stand in the way of research, but be used to incentivize material participation….”

OpenAIRE Monitoring Services – EC FP7 & H2020 and other national funders (presentation at the Open Science FAIR 2017 conference)

“Presentation at the FOSTERplus project workshop on “fostering the practical implementation of open science in horizon 2020 and beyond”, at the Open Science FAIR conference in Athens, September, 7 2017.”

Australian Government Response to the Productivity Commission Inquiry into Intellectual Property Arrangements

At p. 18: “Recommendation 16.1 The Australian, and State and Territory governments should implement an open access policy for publicly funded research. The policy should provide free and open access arrangements for all publications funded by governments, directly or through university funding, within 12 months of publication. The policy should minimise exemptions. The Australian Government should seek to establish the same policy for international agencies to which it is a contributory funder, but which still charge for their publications, such as the Organisation for Economic Cooperation and Development….”

COAF Block Grant – August Update

“Please note that due to high demand, our block grant funding for several COAF partner charities has been depleted as of mid-August 2017….We are pleased that so many LSHTM publications in the past year have been made open access via the ‘gold’ (paid) route. Funding is expected to become available again for the aforementioned COAF partner charities from October, but in the mean time we encourage you to apply for APC waivers from your chosen journals, or follow the ‘green’ (self-archiving, free) route to open access by forwarding your accepted manuscript and acceptance email to”

National goals and guidelines for open access to research articles –

The government has established the following national guidelines to ensure all stakeholders work towards the same goal, including measures that shall support the ongoing work:[2]

  1. Publicly funded research articles are to be made openly available. Researchers shall examine the possibilities for publishing their articles in open access journals and choose open access journals where academically acceptable. Only in exceptional circumstances may articles that are publicly funded be published in journals that do not allow the article to be made available in an academic repository.
  2. All publicly funded research articles must be deposited in a suitable academic repository. This shall take place at the latest on the publication date, irrespective of the publishing channel and when the article can be made openly available.
  3. Institutions and consortia that negotiate agreements with publishers shall ensure that these agreements promote open access without increasing total costs, and that the terms and conditions are open and transparent.
  4. Institutions that fund research projects shall contribute to cover the costs associated with open access publishing. In research performing institutions costs associated with open access publishing shall be seen as part of research budgets, just as costs associated with other key activities. Researchers and research performing institutions are encouraged via their networks to contribute to the promotion of publishing services that deliver the required quality at an appropriate price.”

Estimated costs of implementing an open access policy at a private foundation | bioRxiv

“Background: The Gordon and Betty Moore Foundation (GBMF) was interested in understanding the potential effects of a policy requiring open access to peer-reviewed publications resulting from the research the foundation funds. Methods: We collected data on more than 2000 publications in over 500 journals that were generated by GBMF grantees since 2001. We then examined the journal policies to establish how two possible open access policies might have affected grantee publishing habits. Results: We found that 99.3% of the articles published by grantees would have complied with a policy that requires open access within 12 months of publication. We also estimated the maximum annual costs to GBMF for covering fees associated with “gold open access” to be between $400,000 and $2,600,000 annually. Discussion: Based in part on this study, GBMF has implemented a new open access policy that requires grantees make peer-reviewed publications fully available within 12 months.”

Implementing a Public Access Policy: A Guide for HRA Member Organizations; and HRA Member Public Access Policy Template

“To assist HRA [Health Research Alliance] member organizations wishing to adopt a public access policy, the HRA Public Access Task Group partnered with the National Library of Medicine (NLM) to enable HRA member-funded awardees/grantees* to deposit their publications into PubMed Central (PMC)….The following is a template developed by the HRA Public Access Task Group in conjunction with the Scholarly Publishing and Academic Resources Coalition (SPARC) that can be used by organizations seeking to implement public access policies as a condition of award funding. This template is based on the policy developed by HRA member organization, Autism Speaks. …”

Health Research Alliance

“The Health Research Alliance, a collaborative member organization of nonprofit research funders, is committed to maximizing the impact of biomedical research to improve human health….The HRA partnered with the National Library of Medicine (NLM) to enable HRA member-funded awardees to deposit their publications into PubMed Central (PMC) with an embargo no longer than 12 months….”