RWJF Awards $1.9 Million Grant to PatientsLikeMe to Create World’s First Open Research Platform to Develop Patient-Centered Health Outcome Measurements | PatientsLikeMe

“PatientsLikeMe has been awarded a $1.9 million grant from the Robert Wood Johnson Foundation (RWJF) to create the world’s first open-participation research platform for the development of patient-centered health outcome measures. The platform is part of a new open-science initiative that puts patients at the center of the clinical research process and will allow researchers to pilot, deploy, share, and validate new ways to measure diseases. An ‘idea worth spreading,’ the initiative will be spotlighted today in a presentation at TED2013 by Paul Wicks, Ph.D., PatientsLikeMe’s Research Director and a new TED Fellow.

Health outcome measures are typically developed by clinicians and researchers, and collect information that meet their needs. Linked with the PatientsLikeMe patient network, the new platform will help researchers develop health outcome measures that better reflect patients’ experiences with a disease, and assess health and quality of life in ways that matter to patients.”

Quitting For-Profit Preprints | science of psych

“I’ve decided to quit academia.edu and researchgate and put all of my pre-prints/manuscripts on PsyArXiv. I deleted any manuscript copies that I had uploaded to academia.edu and RG and removed my accounts from them. I’m writing you because you posted a copy of our collaborative work on researchgate. It is of course your prerogative as to how you share our work, but I thought I might ask you to consider taking that copy of our paper down. I’m trying to streamline access points for our work and also to redirect traffic away from these commercial sites. PsyArXiv is indexed by Google scholar, so the work remains freely accessible in a space backed by a non-profit entity (the Open Science Framework). Another benefit of OSF is that it is backed by a large preservation grant, so that the works on PsyArXiv will be supported in perpetuity even if OSF grows or changes.”

Academia.edu | Academia’s Partnership with Britann…

“Academia has teamed up with Encyclopedia Britannica to offer access to all of Britannica’s content to Academia Premium users.

 Academia is also inviting its members to contribute as authors on Britannica’s Publisher Partner Program. We’ve joined dozens of institutions including UC Berkeley, Northwestern University, the University of Melbourne and others in support of the initiative, which aims to expand Britannica’s free, open access content.”

Open Access Meets Social Media | Anthropology-News

“The SCA is experimenting with new ways of making our content accessible beyond the echo chamber of our discipline. As a section, we consider the accessibility of our work to be crucial aspects of public engagement and worlding anthropology, especially in contentious political moments. Our strategy centers on our efforts to make Cultural Anthropology a fully open-access journal, promote the ongoing series on our lively website, and generate buzz surrounding our social media that currently reach over 40,000 followers. All of this is made possible by a large team of student and postdoctoral contributing editors who make up the discipline’s next generation. Here, we highlight a sample of these activities in order to invite more scholars and students to the SCA.”

Crowd Research: Open and Scalable University Laboratories

“Research experiences today are limited to a privileged few at select universities. Providing open access to research experiences would enable global upward mobility and increased diversity in the scientific workforce. How can we coordinate a crowd of diverse volunteers on open-ended research? How could a PI have enough visibility into each person’s contributions to recommend them for further study? We present Crowd Research, a crowdsourcing technique that coordinates open-ended research through an iterative cycle of open contribution, synchronous collaboration, and peer assessment. To aid upward mobility and recognize contributions in publications, we introduce a decentralized credit system: participants allocate credits to each other, which a graph centrality algorithm translates into a collectively-created author order. Over 1,500 people from 62 countries have participated, 74% from institutions with low access to research. Over two years and three projects, this crowd has produced articles at top-tier Computer Science venues, and participants have gone on to leading graduate programs.”

The new alchemy: Online networking, data sharing and research activity distribution tools for scientists – F1000Research

“There is an abundance of free online tools accessible to scientists and others that can be used for online networking, data sharing and measuring research impact. Despite this, few scientists know how these tools can be used or fail to take advantage of using them as an integrated pipeline to raise awareness of their research outputs. In this article, the authors describe their experiences with these tools and how they can make best use of them to make their scientific research generally more accessible, extending its reach beyond their own direct networks, and communicating their ideas to new audiences. These efforts have the potential to drive science by sparking new collaborations and interdisciplinary research projects that may lead to future publications, funding and commercial opportunities. The intent of this article is to: describe some of these freely accessible networking tools and affiliated products; demonstrate from our own experiences how they can be utilized effectively; and, inspire their adoption by new users for the benefit of science.”

[English > Any] For anyone who supports the open-access movement in academia… : translator

“If you want to make a difference and help expand the open-access movement across the world, please send a translation of the above document to the listed email (little.prince@custodians.online). If your language is already listed, feel free to check if there are any corrections that can be made, and send those instead! The present ones are oftentimes not completely error-free.”

Using social media and open access can radically improve the academic visibility of chapters in…

“None of this is to deny that if you have strong primary research to report it is better to push it out in journals wherever feasible. But book chapters can have valuable exploratory, discursive, synoptic and review roles. And they can carry new findings too, especially in start-up fields and with good editors and editing. The old problems from the early digital phase, when for a while chapter texts became literally unfindable, and authors passively left things to publishers to promote their work, no longer apply with much of their previous force. However conservative your editors and publishers may be, you can get your chapter noticed, read and cited in the communities that matter to you.”

Open Science Federation | to open science

“The Open Science Federation is a nonprofit alliance working to improve the conduct and communication of science. We are scientists and citizen scientists, writers, journalists, and educators, and makers of and advocates for Open Data, Open Access, and Open Source and Standards.

Get to know us at @openscience on Twitter, or in Google+, and elsewhere, with which we have connected the largest Open Science network in the world. We recently took up a count, deduplicated, and identified over 40,000 people and groups across our social network.

We do not intend to be at the centre of the Open Science community per se, though analyses often place us there….A network can be stronger than any one organization, and a federation of networks, stronger still. Thus we share access to our social media accounts with many individuals and organisations….”

The OpenAIRE-Connect Project : OpenAIRE blog

“OpenAIRE-Connect is an H2020 EC project, started in January 2017. The project fosters transparent evaluation of results and facilitates reproducibility of science for research communities by enabling a scientific communication ecosystem supporting the exchange of artefacts, packages of artefacts, and links between them across communities and across content providers. To this aim, OpenAIRE-Connect will introduce and implement the concept of Open Science as a Service (OSaaS) on top of the existing OpenAIRE infrastructure (http://www.openaire.eu), by delivering out-of-the-box, on-demand deployable tools in support of Open Science. OpenAIRE-Connect will realise and operate two OSaaS production services (see figure):

  • Research Community Dashboard: it will serve research communities to at publishing research artefacts (packages and links), and monitoring their research impact.
  • Catch-All Notification Broker: it will engage and mobilise content providers, and serve them with services enabling notification-based exchange of research artefacts, to leverage their transition towards Open Science paradigms.

Both services will be served on-demand according to the OSaaS approach, hence be reusable from different disciplines and providers, each with different practices and maturity levels, so as to favour a shift towards a uniform cross-community and cross-content provider scientific communication ecosystem.”