“We believe these formats were essential for collaboration, and that using a storytelling framework was an effective way to demonstrate empathy and build trust across institutions, thus driving change. Indeed, following OATIP, nearly all participants signed a public affirmation to “advocate broadly, and work with our stakeholders both locally and in existing consortia, to advance these common goals.”22 We are excited to follow where these journeys will lead.”
“To investigate the activities and strategies already in place across LIBER’s network, we have created a survey to capture the many ways in which libraries work with OA books among the communities we serve.
We invite respondents from LIBER libraries to address questions such as:
- How can libraries create workflows and funding mechanisms to encourage OA book publishing?
- What kind of training is needed for library staff to adapt to the developments?
- Can you support OA book publishing without starting your own university press?
Please submit your responses to the survey by the end of 17 May 2019….”
“It is difficult – but not impossible – to access academic articles if you don’t have access to journal subscriptions. In this blog, I go through my experience in trying to gain access to academic articles and data while working at the University of Papua New Guinea (UPNG), and how I tried to make the process as easy and efficient as possible. I hope that by sharing the story, and sharing the research portal that I created, that researchers without access to journal subscriptions have more of a chance to find the information they need.
The portal aggregates over 750 sources of online, open data, academic and government articles and makes them searchable through a customisable Google search tool. Most of the work was in finding these resources; putting them in the custom Google search tool was simple. I provide a link to an Excel sheet with all the sources below….”
“The Mights’ story is one of many that highlight the impact of open science and open access. It’s through access to the latest research that patients and their families can find the best care and support.
Once his son’s condition was given a name, Might set out to learn all he could to help Bertrand. “To find answers, we needed more patients and we didn’t have time,” he says.
Might wrote a blog about Bertrand’s condition that he hoped would go viral and rank high when someone searched on Google. Within two weeks of posting, another patient was identified. Over time, Matt helped build a community of patients, researchers and doctors to focus on how to treat and cure Bertrand’s rare disease. It enabled the group to form a foundation and raise money for research. Members of the patient community then volunteered to participate in the research trials….
With Might’s help, Bertrand’s disease has gone from the unknown to a condition with multiple treatments….
At UAB, Might has helped develop a tool to digest abstracts from medical literature using artificial intelligence. This can help patients connect the dots with what might be therapeutic for a given condition. The powerful reasoning tool (mediKanren) was successfully prototyped about a year ago with funding from the National Institutes of Health and is available free to the public….
As the Mights experimented with treatment options for Bertrand, they continued to do research and then share it with others. “I’m very much an open book, anything I find I publish,” Might says. “I’m very pro open science and beyond into open source. If there is code that backs up a paper, I also make that open source and publicly available.” …
“Restricting access to the full medical literature is going to cost lives,” says Might….”
“CODATA-RDA schools changed my career, making me a more responsible researcher but also an Open Science ambassador for the Central American area. I now aspire to be a young researcher that can teach Open and Data Science principles through my job at the University of Costa Rica and through the CODATA-RDA Schools, as well as also serve as a mentor for other people that want to learn how to practice Open Science.”