Open Science: The Next Frontier for Neurology

“What are One Mind’s open science principles?

To support Open Science for brain disease and injury, One Mind urges the international research community to adopt the following principles:

Provide informed consents for collection of medical data obtained from patients, which should permit use of their de-identified (anonymous) data for research related to a broad range of conditions — consistent with protecting patient privacy.

Use widely accepted common data elements and conform to the highest possible standards when clinical data is collected. This enables it to be used by the widest possible array of users, whether academic, medical, clinical or commercial.

Make data available to the research community as soon as possible after study completion, with the goal of opening data access within six months whenever possible.

Make data accessible to external researchers during the course of a study (subject to relevant data use agreements).

Give data generators proper attribution & credit from those who use their data.

Do not delay the publication of findings, as it may affect patient care.

Intellectual property should not stand in the way of research, but be used to incentivize material participation….”

Elsevier Embraces Data-Sharing Standards, in Step Toward Scientific Openness – The Chronicle of Higher Education

“The cause of scientific transparency and accuracy got a boost on Tuesday with the decision by the publishing giant Elsevier to endorse a broad set of standards for open articles and data. Elsevier agreed to add its 1,800 journals to the 3,200 that already accept the “Transparency and Openness Promotion” guidelines drafted in 2005 by a group of university researchers, funders and publishers. The standards expand article-citation practices so that authors get credit for making clear the data, methods, and materials needed for replicating their work….”

Promoting an Open Research Culture: The TOP Guidelines for Journals (version 2)

“By developing shared standards for open practices across journals, we hope to translate scientific norms and values into concrete actions and change the current incentive structures to drive researchers’ behavior toward more openness. Although there are some idiosyncratic issues by discipline, we sought to produce guidelines that focus on the commonalities across disciplines….”

Recording the past and the future in 3-D: News at IU: Indiana University

“The handheld scanner looks like an old-school video game controller, a clunky throwback to the early days of Atari. But these mobile 3-D scanners used by the staff in the Indiana University-Purdue University Indianapolis University Library Center for Digital Scholarship are actually very advanced technology, and they are changing the way we record recent history, ancient history and even the future….Proving its place at the front of the 3-D digital archiving crowd, the Center for Digital Scholarship recently received a grant from LYRASIS — a nonprofit organization for information professionals — to develop standards for how digital archives are recorded….”

Open Material Transfer Agreement (OpenMTA)

“The Open Material Transfer Agreement (OpenMTA) is a simple, standardized legal tool that enables individuals and organizations to share their materials on an open basis….Developed as a collaborative effort led by the BioBricks Foundation and the OpenPlant Initiative, with input from researchers, technology transfer professionals, social scientists, lawyers, and other stakeholders from across the globe, the OpenMTA reflects the values of open communities and the practical realities of technology transfer….”

Machine accessibility of Open Access scientific publications from publisher systems via ResourceSync

“Poster presented at OAI10, University of Geneva, 21 -23 June 2017.”

 

“The number of scholarly research papers being published is gradually growing; it is estimated that approximately 1.5 million of research papers are produced each year and about 4% of them are offered via Open Access journals[1]. The high volume of scientific papers introduces new opportunities for content discoverability and facilitates a growth in various scientific disciplines via text and data mining (TDM)[2]. One of the greatest barriers to TDM is caused by the difficulty of programmatically accessing open access content from a wide range of publishers[3]…”

Can you Trust It? Using Open Access Materials in the Corporate World – Copyright Clearance Center

“How does the corporate researcher or library professional make sure that open access content is trustworthy? Here are some suggestions:’

Open Data for Development — Global Partnership for Sustainable Development Data

“Open Data for Development is a global partnership of more than 65 institutions eager to advance the creation of locally-driven and sustainable open data ecosystems in developing countries. It focuses on building up the supply of quality open data and improving the use of that data by leaders in government, civil society, the media and business so that it furthers public interest and improves peoples’ lives.

Funded by the International Development Research Centre (IDRC), World Bank, Global Affairs Canada and U.K. Department for International Development (DFID), OD4D works with leading open data organizations to create knowledge and inform policies, standards, innovation and research in Latin America, the Caribbean, Eastern Europe, Africa and Asia. OD4D’s focus in 2014-16 has been on helping developing-country governments, entrepreneurs and civil society create a global action plan to harness open data for development and to manage national data initiatives….”