Open Science: The Next Frontier for Neurology

“What are One Mind’s open science principles?

To support Open Science for brain disease and injury, One Mind urges the international research community to adopt the following principles:

Provide informed consents for collection of medical data obtained from patients, which should permit use of their de-identified (anonymous) data for research related to a broad range of conditions — consistent with protecting patient privacy.

Use widely accepted common data elements and conform to the highest possible standards when clinical data is collected. This enables it to be used by the widest possible array of users, whether academic, medical, clinical or commercial.

Make data available to the research community as soon as possible after study completion, with the goal of opening data access within six months whenever possible.

Make data accessible to external researchers during the course of a study (subject to relevant data use agreements).

Give data generators proper attribution & credit from those who use their data.

Do not delay the publication of findings, as it may affect patient care.

Intellectual property should not stand in the way of research, but be used to incentivize material participation….”

Estimated costs of implementing an open access policy at a private foundation | bioRxiv

“Background: The Gordon and Betty Moore Foundation (GBMF) was interested in understanding the potential effects of a policy requiring open access to peer-reviewed publications resulting from the research the foundation funds. Methods: We collected data on more than 2000 publications in over 500 journals that were generated by GBMF grantees since 2001. We then examined the journal policies to establish how two possible open access policies might have affected grantee publishing habits. Results: We found that 99.3% of the articles published by grantees would have complied with a policy that requires open access within 12 months of publication. We also estimated the maximum annual costs to GBMF for covering fees associated with “gold open access” to be between $400,000 and $2,600,000 annually. Discussion: Based in part on this study, GBMF has implemented a new open access policy that requires grantees make peer-reviewed publications fully available within 12 months.”

Health Research Alliance

“The Health Research Alliance, a collaborative member organization of nonprofit research funders, is committed to maximizing the impact of biomedical research to improve human health….The HRA partnered with the National Library of Medicine (NLM) to enable HRA member-funded awardees to deposit their publications into PubMed Central (PMC) with an embargo no longer than 12 months….”

Bill & Melinda Gates Foundation Open Access Policy – Bill & Melinda Gates Foundation

“As of January 1, 2015 our Open Access policy will be effective for all new agreements. During a two-year transition period, publishers will be permitted to apply up to a 12 month embargo period on the accessibility of the publication and its underlying data sets. This embargo period will no longer be allowed after January 1, 2017.

Our Open Access policy contains the following elements:

  1. Publications Are Discoverable and Accessible Online.  Publications will be deposited in a specified repository(s) with proper tagging of metadata. 

  2. Publication Will Be On “Open Access” Terms.  All publications shall be published under the Creative Commons Attribution 4.0 Generic License (CC BY 4.0) or an equivalent license. This will permit all users of the publication to copy and redistribute the material in any medium or format and transform and build upon the material, including for any purpose (including commercial) without further permission or fees being required. 

  3. Foundation Will Pay Necessary Fees.  The foundation would pay reasonable fees required by a publisher to effect publication on these terms. 

  4. Publications Will Be Accessible and Open Immediately.  All publications shall be available immediately upon their publication, without any embargo period.   An embargo period is the period during which the publisher will require a subscription or the payment of a fee to gain access to the publication. We are, however, providing a transition period of up to two years from the effective date of the policy (or until January 1, 2017).  During the transition period, the foundation will allow publications in journals that provide up to a 12-month embargo period.

  5. Data Underlying Published Research Results Will Be Accessible and Open Immediately.  The foundation will require that data underlying the published research results be immediately accessible and open.  This too is subject to the transition period and a 12-month embargo may be applied.”

Wellcome Trust launches open-access publishing venture : Nature News & Comment

“One of the world’s largest biomedical charities, the Wellcome Trust in London, will launch an open-access publishing venture later this year. The idea behind Wellcome Open Research is to allow Wellcome grant recipients to publish their findings more quickly and to create a model that, according to the charity, other funders might adopt in future….”

Wellcome Open Research author survey results | Wellcome Open Research Blog

“Author survey shows that publication speed and the ability to share a variety of research outputs are the primary reasons why authors publish on the Wellcome Open Research publishing platform. Michael Markie, Publisher at F1000 and Robert Kiley, Head of Open Research, Wellcome discuss the survey results and what actions will taken based on them.”

Sowing the seeds for change in scholarly publishing – Collaborative Knowledge Foundation

“We envision building an evolving network of modular, interoperable, flexible and reusable open source projects that facilitate rapid, transparent and reproducible research and research communication for the public good. Rather than remaining independent and siloed, these projects will share resources and learn from each other, creating an open science infrastructure.”