Line-by-line data of clinical trial audit – a Freedom of Information request to Health Research Authority – WhatDoTheyKnow

“This FOI is filed on behalf of TranspariMED.

The FOI relates to the HRA’s “Clinical Trial Registration Audit Report” covering trials receiving ethics approval during H1 2018:
https://www.hra.nhs.uk/planning-and-impr…

Please provide the following information:

1. A copy of the full data set that formed the basis for the report of September 2015, including all lines and columns included in the original data set. Please provide the data in Excel format. In case you do not provide the full data set, please redact (rather than delete) the data fields not released, leaving intact the corresponding line and/or column headings.

2. An estimate of the total HRA staff workload involved in performing this audit, using FTE person-days as the metric.

Please note that in response to a similar previous request, the HRA found that it is in the public interest to release this information:
https://www.whatdotheyknow.com/request/d…

Please also note that in its previous response (linked above), the HRA provided a data set that was barely usable. Please provide a data set that is comprehensible and fully usable in order to avoid the need to manage a request for internal review….”

Open Access: A citizen’s guide to discovering who holds your info – and what’s in there

“When people think of getting information from public bodies, they often think of Freedom of Information (FOI). But when it comes to accessing records which contain your personal information, there are now more avenues than FOI.

Of course, it’s still a useful route – while many think of the FOI request as the preserve of journalists for stories about politicians’ expenses or the behind the scenes of some dubious government decision, in fact of the nearly 40,000 FOI requests last year, nearly 60% were for personal information….”

 

Prime minister’s department says granting FOI request on taxpayer-funded research would ‘prejudice’ government | Scott Morrison | The Guardian

“Scott Morrison’s department and his political office have rejected freedom of information requests for access to taxpayer-funded research undertaken by Jim Reed, a long-term researcher for Liberal party pollster Crosby Textor.

Reed, who now runs his own agency, Resolve Strategic, was awarded a $541,750 contract by limited tender in April to undertake market research related to Covid-19 for the prime minister’s department.

 

Another contract of similar value was awarded to Reed by the Treasury on a recommendation from Morrison’s department. Officials have confirmed the market research has been shared with both the prime minister and treasurer’s offices.

Guardian Australia requested access to the market research and correspondence pertaining to it, but Morrison’s department rejected the application on a number of grounds, including that disclosure would “substantially prejudice the Australia government’s ability and capacity to effectively respond to the most critical issues facing Australia at the current time”. …”

Contracts Library – SPARC

“A number of libraries and consortia have provided the full text of Big Deal licenses. These provide useful information about the terms and conditions publisher may seek to include in their standard agreements. For tips on how to acquire additional contracts not listed here, see our “Freedom of Information Requests” guide. If you have an agreement that can be lawfully shared here, please contact us. We’ve also compilled tips on pushing back against confidentiality clauses and NDAs. …”

Christian Gutknecht on Twitter: “5 months after my FOI request, we finally know what the @unil and the @HEPVaud is paying for Elsevier. #openaccess @OpenScienceUNIL @freiedokumente @smetille https://t.co/J0TT18FTkj https://t.co/wZ9GmLexJb” / Twitter

From Google’s English:  “Your correspondence received on October 11, 2020 has captured our full attention. We have the pleasure to send you the requested information contained in the following document:

• Read & Publish pilot agreement between swissuniversities and Elsevier (“Elsevier

Subscription Agreement ”) for the years 2020-2023, page 12.

The amount that the BCU Lausanne will pay for the perimeter of the University of Lausanne (incl.

HEP Vaud) for the years 2020-2021-2022-2023 for this license amounts to:

2020: EUR 1’229’064.32

(excl. VAT)

2021: EUR 1’253’645.61

(excl. VAT)

2022: EUR 1’281’728.45

(excl. VAT)

2023: EUR 1’307’248.11

(excl. VAT)

 

We specify that the 2022 and 2023 prices are estimates because they are subject to correction in

according to the effective number of articles published by the University of Lausanne in 2020 and 2021.

Within the meaning of article 12 of the law of 24 September 2002 on information (Llnfo; BLV 170.21),

we are required to provide you with an answer within 15 days of the

receipt of your request. However, given the difficulty in obtaining validations

required, we inform you that we have rendered our decision upon receipt of the

written confirmations from the Data Protection and Right to Information Authority and

the Administrative and Public Law Court of the Cantonal Court that no appeal has been registered.

In compliance with article 11 Llnfo, we hereby confirm that no fee

you will not be asked for the work done to date following your request.”

The first statewide, open access dataset tracking public records requests in New Jersey – ScienceDirect

Abstract:  State freedom of information laws are vital mechanisms for providing public access to government records and supporting civic engagement through the effectuation of a public policy of transparency at the state level within the United States, not unlike their federal counterpart, the Freedom of Information Act (FOIA). New Jersey state law facilitates public access to government records under the Open Public Records Act (OPRA). Codified at N.J.S.A. 47:1A-1 et seq., OPRA applies to state, county and local public authorities but exempts the judicial and legislative branches from its disclosure requirements. Since OPRA took effect in 2002, it has been difficult to track the full extent of law’s impact across New Jersey’s 21 counties, 565 municipalities, and numerous state agencies, school districts and independent authorities, all of which must individually respond to requests under the law. To the best of the author’s knowledge, no official source has compiled detailed metadata tracking the content and disposition of OPRA requests at the state, regional and municipal levels within New Jersey using individual requests, and authorities rarely proactively disclose their responses to requests they receive, necessitating further data collection to support research into the impacts of this law. This article presents the OPRAmachine dataset: data containing detailed metadata on public records requests submitted to state & local public authorities in New Jersey since October 2017 collected through the implementation of information and communication technologies (ICT) to facilitate the freedom of information request process. The data was collected using an open-source web interface that allowed users to submit an OPRA request to public authorities, with responses stored in a database and made available via the internet. After their request received a response, users were asked to answer a single survey question describing the status of their request, with their answer used to classify the request. Descriptive statistics, tables and frequencies were produced for the dataset and are included in this article. These data will assist state policymakers and other interested parties with assessing trends in OPRA requests across multiple types of public authorities & geographic regions. These data can inform more efficient government records management procedures, foster civic engagement by increasing government transparency and can inform the development of possible reforms to the OPRA law by showing trends in requests & responses that can be used to evaluate the law’s implementation throughout the state.

 

Documenting COVID-19

“Documenting COVID-19 is a repository of searchable documents related to the COVID-19 pandemic obtained through state open-records laws and the Freedom of Information Act. Click on a state for details about the 57 document sets available as of July 14, 2020, and news coverage that have used those materials….”

Documenting COVID-19

“Documenting COVID-19 is a repository of searchable documents related to the COVID-19 pandemic obtained through state open-records laws and the Freedom of Information Act. Click on a state for details about the 57 document sets available as of July 14, 2020, and news coverage that have used those materials….”

FOIA: Film industry lobbies South Africa’s Parliament to suspend Copyright Amendment Bill | Knowledge Ecology International

“Through a Freedom of Information Act (FOIA) request, Knowledge Ecology International (KEI) has obtained 311 pages of correspondence between officials from the Office of the US Trade Representative (USTR) and employees of the Motion Picture Association (MPA), the Recording Industry Association of America (RIAA) and other entities including law firms on matters regarding South Africa and copyright policy. The FOIA request was filed by Claire Cassedy on October 29, 2019. The 311 page document is available here: https://drive.google.com/file/d/1wUYHzgwtYUaYiMLLeGfV7ucxk5Q1tpu0/view?usp=sharing

The correspondence dates from December 2018 to November 2019 and reveals an assiduous campaign mounted by the MPA and RIAA to thwart the passage of South Africa’s Copyright Amendment Bill in the South African Parliament and to prevents its signing by the President of South Africa, Cyril Ramaphosa. The MPA and RIIA, working in concert with the International Intellectual Property Alliance (IIPA) petitioned USTR to impose higher tariffs on South Africa (by revoking the Generalized System of Preferences) over concerns with, inter alia, the fair use provisions contained in South Africa’s Copyright Amendment Bill….”